Presentation Description: 

Supported Decision Making (SDM) is now a well-recognized practice by which people with intellectual and developmental disabilities (I/DD) can make their own decisions with the support of trusted persons in their lives. SDM has been recognized by courts, and now by statute, as a “less restrictive alternative” to guardianship. Recently enacted Supported Decision-Making Agreement (SDMA) legislation will grant recognition to decisions made by persons with SDMAs that have been made through a recognized process of facilitation, preventing third parties from discriminating against them–or insisting that a guardian be appointed– because of their disability.

Supported Decision-Making New York (SDMNY) has spent the past 6 years developing SDM facilitation under grants from NYS Developmental Disabilities Planning Council (DDPC), the Ford Foundation and others, and is now the recipient of a $4 million grant from the NYS Office for People with Developmental Disabilities (OPWDD) to design and pilot a facilitation service delivery model that could be expanded to provide SDM facilitation statewide.

The presentation includes the SDMNY facilitation model, the new legislation, the pilot project, and how ILCs might be involved.

Date: 12/15/2022


  • Kristin Booth Glen, Director of SDMNY
  • Joan Cornachio, Associate Director of SDMNY

Presentation Recording:  Click here to view the webinar recording

Additional Materials: 

Presentation Description: The Managed Long-Term Care Data Transparency Project makes public important data showing how New York State's Medicaid Managed Long-Term Care plans spend billions of Medicaid dollars to provide long-term care services that enable New Yorkers with disabilities of all ages to live safely in the community.

Nearly 300,000 New Yorkers depend on Medicaid home care services from Medicaid Managed Long-Term Care (MLTC) plans. While New York State makes some MLTC data public, there is a huge gap that this project aims to fill by posting selected data from Managed Medicaid Cost and Operating Reports (MMCOR) Reports, obtained from 2017 and 2018 reports. The Managed Long-Term Care Data Transparency Project presents selected MMCOR data in four interactive, downloadable visualizations, with a fifth visualization showing changes over time in enrollment in each MLTC plan.

Date: 11/9/2022


Presentation Recording: Click here to view the webinar recording

Presentation Description: Disability Rights New York (DRNY) is New York State’s Protection and Advocacy System and Client Assistance Program (P&A/CAP). DRNY is federally funded to provide free legal representation directly to people with disabilities and to monitor and investigate allegations of abuse and neglect. Jennifer Monthie, Legal Director, shares information about the P&A/CAP system, DRNY’s current priorities and services and, answer questions.

Date: 9/28/2022


  • Jennifer Monthie, Legal Director, Disability Rights New York

Presentation Recording: Click here to view the webinar recording

Additional Materials: Click here to access the presentation slides