Training on 17-A Guardianship Process
The purpose of this webinar is to:
- Familiarize advocates with the current 17-A Guardianship process
- Educate advocates on how S.4983 will change the 17-A process
The current 17-A Guardianship process violates rights of people with developmental disabilities and traumatic brain injuries to due process and equal protection under the law. New York State's Olmstead report identified many of these rights violations. In response to this Report the Office for People with Developmental Disabilities has submitted a department bill (S.4983) to address these failures. The New York Association on Independent Living has asked Disability Rights New York, the Protection and Advocacy System for New York State, to educate our community on the 17-A Guardianship Statute in New York, to break down Senate Bill S.4983 and describe how this bill is designed to protect the civil rights of people with developmental disabilities.
Author: Hosted by NYAIL. Presented by Jennifer Monthie, Esq., Director PADD, PAAT and PATBI Programs at Disability Rights New York.
Presentation Slides: Training on 17-A Guardianship Process (PDF)
Working with Individuals who Experience Mental Health Issues: What the Transition Specialist Needs to Know
Video Description: The purpose of this webinar is to review various aspects of working with individuals who experience mental illness. We will review basic information about mental health conditions, why the Independent Living Philosophy is a perfect fit for working with this population, possible service options (waivers, MLTC, Mental Health Service System, Health Homes, Case management), as well as possible community resources.
Author: Hosted by NYAIL. Presented by Laurie Carter of the MFP Transition Center Project.
Presentation Slides: Working with Individuals who Experience Mental Health Issues (PDF)
An Overview of Strokes
Video Description: Join this webinar to learn about Strokes. Stroke is primarily a disease of the brain. However, the brain is the master of all the body systems, so a stroke can affect a person dramatically in unlimited ways. Since it is the 5th leading cause of death and the leading cause of adult disability in the US, we should increase our understanding of how to best assist stroke survivors in maintaining independence. We will discuss what a stroke is, the different kinds of stroke, risk factors, how it is diagnosed, some usual treatments, phases of recovery, resources for assistance and the lasting impact a stroke can have on an individual.
Author: Hosted by NYAIL. Presented by Laura Bingell of the MFP Transition Center Project.
Presentation Slides: An Overview of Strokes (PDF)
Webinar Recording: An Overview of Strokes Webinar 2016-03-29
Engaging People with Developmental Disabilities in the OPWDD System
Video Description: Representatives of the Self-advocacy Association of New York State, Inc., will discuss our experience in engaging with individuals who live in Intermediate Care Facilities (ICF) about their options for support through the Money Follow’s the Person concept. As many of the people who live in ICFs require a lot of support to speak for themselves or express their preferences, we’ll also talk the importance of the involvement of family, friends, and direct support staff who know them well in the process whenever possible. Finally we’ll talk about interacting with the staff who manage and supervise ICFs.
Author: Hosted by NYAIL. Presented by BJ Stasio and Steve Holmes of the Self-advocacy Association of New York State.
Presentation Slides: Engaging People with Developmental Disabilities (PDF)
Congestive Heart Failure (CHF)
Video Description: Watch this webinar to learn about heart failure. We will discuss congestive heart failure as well as both left and right sided heart failure. The focus will be on congestive heart failure, also referred to as CHF. Our goal will be for you to have a better understanding of this disease and the impact it can have on those with whom you are working. We will discuss the types and classes of heart failure, definition, warning signs, symptoms and diagnosis, prevention, treatment options, living with heart failure, and advanced heart failure.
Author: Hosted by NYAIL. Presented by Christine Trimboli of the MFP Transition Center Project.
Presentation Slides: Congestive Heart Failure (PDF)
Webinar Recording: Congestive Heart Failure Webinar 2016-02-02
Wanting to Go Home…Waiting to be Asked: Section Q and People with Developmental Disabilities
Video Description: CIDNY’s study looked at the State’s ability to achieve its deinstitutionalization goals through effective administration of the federal survey requirement that reflects the nation’s long-term care policy: Section Q of the federal government’s assessment the Minimum Data Set (MDS). We focused on how Section Q’s referral question is working for people with developmental disabilities in New York City.
The project goals were: to evaluate the current New York State process for complying with Section Q; to make recommendations for application to people with developmental disabilities; and to develop training for local organizations on how to help their developmentally disabled clients (and families) better understand Section Q and the referral process to improve their chances of receiving care in the most integrated setting.
This training, based on our study, helps participants:
- Understand the difference between PASRR and the MDS Section Q;
- Understand federal Section Q referral requirements and the philosophy that supports them;
- Understand how OPWDD’s Transformation Agreement relates to Section Q;
- Articulate the rights of people with developmental disabilities under these new rules;
- Articulate the perspectives of stakeholders;
- Express the ways other states have complied with Section Q; and
- Develop and share ideas for improving the Section Q referral process.
Author: Hosted by NYAIL. Presented by Susan Dooha, Executive Director of Center for Independence of the Disabled, New York (CIDNY).
Presentation Slides: Section Q and People with Developmental Disabilities (PDF)
Webinar Recording:view on YouTube.
Understanding the UAS and PRI/Screen
Video Description: Evaluations for HCBS can be confusing, especially if you are unsure in how to interpret them. The NYS Universal Assessment System (UAS) and Patient Review Instrument (PRI) and Screen can be very useful in determining a person’s needs and required level of care. This presentation is to build on your understanding of the purpose and process, and how RUGs, CAPS, NFLOC influence what services an individual may need when transitioning. Join Christine Trimboli RN and Laura Bingell RN, Transition Center Nurses, for a joint presentation UAS and PRI/Screen for Transition Specialists.
Author: Hosted by NYAIL. Presented by Laura Bingell and Christine Trimboli of the MFP Transition Center Project.
Presentation Slides: Understanding the UAS and PRI/Screen (PDF)
Webinar Recording: Understanding the UAS and PRI Screen Webinar 2016-01-19
Advocate Training for Opposing Assisted Suicide Laws
Video Description: The purpose of this webinar was to:
- Familiarize advocates with the key arguments against assisted suicide laws
- Enable advocates to effectively respond to counter arguments
- Provide materials that document assisted suicide problems and abuses in Oregon and Washington
- Discuss advocacy strategies and opportunities to work in coalition with other groups
The New York Association on Independent Living opposes legalization of physician assisted suicide and asked two national disability rights organizations working to oppose these laws to assist our community in opposing proposals that have been introduced in New York. Not Dead Yet and the Disability Rights Education & Defense Fund presented talking points, documented cases of assisted suicide abuses, and shared their experiences in addressing counter arguments in communications with policy makers, advocates and media on this controversial issue.
Author: Hosted by NYAIL. Presented by Diane Coleman, President/CEO of Not Dead Yet (NDY) and Marilyn Golden, Senior Policy Analyst at Disability Rights Education & Defense Fund (DREDF).
Presentation Slides: Advocate Training for Opposing Assisted Suicide Laws (PDF)
Webinar Recording: Advocate Training for Opposing Assisted Suicide Laws Webinar 2016-01-11
Transformation is Us: Our Lives, Our Choices, Our Community
Video Description: Representatives of the Self-advocacy Association of New York State, Inc., will discuss SANYS advocacy around the Office of People with Developmental Disabilities' (OPWDD) Transformation Plan. For self-advocates, transformation of OPWDD's system means we will have as much control as we can over where we live, our choices for employment and other meaningful activities, and who supports us. We'll talk about SANYS' view of the HCBS settings rule and the best way to ensure Money Follows the Person (MFP)—self-determination/self-direction.
Author: Hosted by NYAIL. Presented by Steve Holmes, Administrative Director of the Self-Advocacy Association of New York.
Presentation Slides: Transformation is Us: Our Lives, Our Choices, Our Community (PDF)
Webinar Recording: Transformation is Us Webinar 2015-11-02
Meeting the Needs of Persons Living with Brain Injury
Video Description: Brain injury is often called the "silent epidemic" because of the staggering number of people who are injured each year. More than 140,000 New Yorkers sustain a brain injury each year. Each year, traumatic brain injuries result in more than 2,000 deaths, 19,000 hospitalizations, and over 112,000 emergency department visits among New York State residents. Brain Injury is never expected, it can strike at any time. It has no cultural, geographic or economic preference and can strike people from all walks of life. When it does it can have far reaching consequences. Effects of brain injury can include impaired thinking or memory, movement, sensation, or emotional functioning. These issues not only affect individuals but can have lasting effects on families and communities. This workshop will encompass: (1) What is brain injury, including statistics, signs & symptoms; (2) How brain injury can occur and common problems after brain injury; (3) Resources and supports, including "take-home" handouts and multimedia materials; and (4) Q & A opportunity. Attendees will leave with a greater understanding of the impact of brain Injury, as well learning about the resources & supports offered to individuals with brain injury -- and their families-- through the Brain Injury Association of New York State and the NYS waiver programs.
Author: Hosted by NYAIL. Presented by Karen Thomas of Brain Injury Association of New York State.
Presentation Slides: Meeting the Needs of Persons Living with Brain Injury (PDF)
Webinar Recording: view on YouTube